Trigeminal Neuralgia Association of Canada

Lethbridge Chapter

 

THE TN NEWS

MARCH 1, 2003

Volume 3, Issue 3

 

EMAIL VERSION * EMAIL VERSION * EMAIL VERSION * EMAIL VERSION * EMAIL VERSION

 

WHO WE ARE.....


The Lethbridge Support Group is open to everyone who wishes to learn more about Trigeminal Neuralgia and who would like to support TN sufferer’s and their families. Meetings are held at 2 p.m. every second Saturday monthly at the Lethbridge Senior Centre, 500-11 Street South. Occasionally, films and/or guest speakers are presented. There is time reserved at each meeting for open discussion.

 

 

DISCLAIMER

This newsletter is not intended to diagnose, prescribe, or to replace the service of your physicians; but only to give you information about our member’s experiences.

 

 

NEXT MEETINGS....

 

Saturday March 8, 2003

2:00 p.m. @ Senior’s Centre

Saturday April 12, 2003

2:00 p.m. @ Senior’s Centre

 

 

DONATIONS

Donations to the TNAC are gratefully received. Your monetary support helps defray the cost of TNAC News, copies, supplies, postage, etc.  Please make your cheque payable to Trigeminal Neuralgia Association of Canada and mail to: 1514 Lakemount Blvd., Lethbridge, Alberta T1K 3K4

 

 

 

LOGO’S - LOGO’S - LOGO’S

 

We have had some very nice Logo’s submitted. If you still wish to submit an idea, please do so ASAP. We would like to be able to have our letterhead printed as soon as we can. Lapel pins, using our Logo, are being considered as another means of fundraising for our Organization.

 

HOORAY—WE DID IT!!!

SPECIAL ANNOUNCEMENT

SEE MARION’S DESK

 

Please keep May ?? And June 28, 2003 open for more exciting news.

 

 

 

Happy Birthdays To All Who Are Celebrating during March!

 

 

 

QUESTION ASKED:

 

   Q:  If we send fees and donations to TNAC should we continue to donate to the USA Branch?

   A:  That is your decision. Should you want your fees/donations to go to the TNAC, we would welcome your support.

 

 

 

Last Meeting News:

            We were very pleased with the number of people that came out for our February meeting. We would like to welcome Jim Van Loo to our group and hope you all received the support that we all need to cope with our affliction.

          Marion started the meeting by reading some of the responses from our January mailing. All of the responses were very positive and supportive. Marion has some email addresses if anyone would like to respond. Of the letters sent in January only about 20 have come back undeliverable.

          Marion has ordered 6 information tapes from the TNA.

          Did anyone see the notice of our TNAC in the local papers and if so, what did you think?

          It looks like 3 new support groups may be starting up. Richmond, B.C.; Dauphine, MB and Ottawa, ON. That’s very good news!

          Tovi Nalder is presently hunting for a lawyer to do pro bono work for us.

          Patty and Marion are busy building our database getting us better organized every day!

          There was a little discussion about Hope Air which was also mentioned in the February Newsletter. This is good news for those who may require surgery but cannot afford to travel.

          We are still waiting to hear from Drs. Casey and Kaufmann regarding their possible presentations in the spring of this year.

          Once the business end of the meeting was done, we had our usual informal discussions with old & new members. Hope we didn’t scare anyone away.

          Looking forward to seeing you all at our March meeting.

…...Don Brewer, Sec/Treas.

 

NEW MEMBERS FOR THE MONTH OF FEBRUARY 2003

Alberta

B.C.

Manitoba

Ontario

Saskatchewan

Alice Harder    

Lorne Haner

Jessie Schenk

Hunter Walker

Bernard Bastian           

Zenon Malec

Katy Edmundson

Cecil Chandless

 

 

Alvina Brouwer

Mary Rees

Raymond Trudeau

Barry Martin

Robina Hughes

Alfred Jauslin

Elizabeth Blake

 

Audrey Korman

Audrey Halowaty

Myrtle Gresson

GeorgeParkasewych

 

 

 

 

 

Janny Switjers  

Dorothea Smith

Merrill Macartney

Violet Smith

Carolina Crespi

Mary Merrill

Gerhard Kronenberg

Olga Seniw

Norman Kudrenecky

Maureen Leonard

Thereza Stephens

Janet McCluskey

Rolande Lister  

George Milic

Carol Horvat    

Brenda Sharp

Jacqueline Mudde

John Rarie

Walter Van Weerdhuizen

Carol Scully

Kelly Kanellakis

Leslie Ellis

Gary Bannister 

Ulf Caap

Johanna Hensen           

 

 

Faye Meyer

J. Angus

Irene Klassen

 

 

 

 

 

QUEBEC

Claude Robert  

Betty Hulroyd

 

 

NEW BRUNSWICK

Constance Allen

 

 

DONATIONS RECEIVED

Gary Bauer

Lorne Haner

Alfred Jauslin

 

 

 

Irene Klassen

Alice Harder

Carolina Crespi

 

 

Zenon Malec

Hunter Walker

Jacqueline Mudde

Elizabeth Blake

 

 

 

 

 

IMPORTANT NOTE:

      We are trying to establish a database so please remember to return your questionnaire (by regular mail). In this way, it will help us to serve you better. Should you have previously paid your Membership fees - Please mark as such. The sooner we get back all the questionnaire’s, the quicker we can complete the database. Thank you to all for your co-operation.

          Marion

 

 

MY TN STORY: GARY BAUER, CALGARY, ALBERTA

 

     At the age of 43 years & having had a very healthy & pain free existence until one July day in 1988. I was taking a shower when a sharp pain in the right side of my forehead literally put me to my knees. We were living in Whitehorse at the time & I went to a local GP who did not diagnose the cause. Following this the attacks moved to my front teeth so I visited a dentist in Edmonton who did X-rays which indicated no teeth related problems. Fortunately the dentist had encountered a similar case four years before in which the individual was later diagnosed with TN. So in the fall of 1988 I was introduced to tegretol which because a major component in my life for the next 10 years.

     During this period the intensity & frequency of attacks varied significantly with remissions more common in winter months & painful periods frequently during the summer season. There were a few remissions over the years with one lasting several months but inevitably the attacks would return & I had to respond by increasing drug dosages. Eventually the pain entered the lower jaw area which sometimes made it near impossible to eat for short periods of time until increased tegretol levels brought the condition under control. All three branches of the trigeminal nerve had triggered attacks in my case but the worst & most enduring was the lower branch.

     When we relocated from Edmonton to Calgary in 1996 the attacks were steadily getting worse & our family doctor (Dr. Ian Kendal) referred me to a neurologist who had a cat scan done which fortunately confirmed there were no tumors. I inquired about possible treatments but the neurologist thought it better to rely on the drugs instead of more intrusive alternatives. Eventually the side effects of prolonged use of tegretol became apparent with occasional dizzy spells and some tiredness. I was fortunate in that Dr. Kendal closely tracked my condition with regular medicals & blood work. By the summer of 1998 I was taking up to 2400 mgs. Of tegretol per day to control frequent & severe attacks. My blood count dropped significantly from the high drug intake & it was at this point we decided that something else must be done. A switch to Neurontin resulted in less adverse side effects than tegretol but the regular attacks persisted. I read  extensively on the various treatments with particular interest in the microvascular decompression (MVD) procedure which held hope for a permanent fix & asked Dr. Kendal to identify those skilled in the procedure in the U.S. & Canada. The search identified Dr. Kaufmann who had trained & specialized in such treatments in the U.S. & had returned to Canada & the Foothills Hospital in Calgary. Considering the relatively few cases of TN in the population it was indeed fortunate that such a proficient specialist resided here. An appointment with Dr. Kaufmann followed by a MRI that clearly showed a blood vessel impinging on the trigeminal nerve & the confidence gained from discussions with Dr. Kaufmann confirmed that the MVD procedure was for me. 

     I entered the Foothills hospital on Thursday, October 30, 1998 & following a four hour procedure was on the mend & returned home on Tuesday, November 4th. I was off work for the next 10 days & returned to part days & was back doing overseas travel in December. I gradually went off the Neurontin over a four week period following the operation. I have not had any TN pain since the morning of October 30th.

     I am extremely grateful to the skill & dedication of Dr. Kaufmann who has provided me a much appreciated four plus years of normal life after 10 years of discomfort & pain which only those who have experienced it truly understand. Although Dr. Kaufmann has since relocated to Winnipeg the ability for TN sufferers to access this first class individual is very encouraging as I hold him in the highest regard.

     P.S.: I would strongly recommend that anyone seeking further knowledge on TN obtain the book “Striking Back” as it has a wealth of information that can be a valuable aid in all aspects of TN & it’s treatments.

 

Gary Bauer, Calgary, Alberta

 

 

 

 

 

 

Notes From Marion’s Desk:

 

If ye have faith as a grain of mustard seed, Nothing shall be impossible unto you.

Matt. Chapter 17:20

 

This is so true, a tiny grain of mustard seed lies dormant & all of a sudden it starts to grow. And so it is with the TNAC—let us keep it growing.

 

HOORAY—GREAT NEWS

 

WE HAVE RECEIVED OUR

CHARITABLE ORGANIZATION

NUMBER!!!!

 

Receipts can now be issued for

Income Tax; 2002 and 2003

 

   I received a call from the Charitable Organization Directives on February 25, 2003 advising that our Charitable Organization Number had been granted. This was truly a big day for me as we have been waiting since November which really isn’t very long but it seemed like it was forever. We have managed to jump over two MAJOR hurdles and now for the biggest one of all - SUPPORT GROUPS ALL ACROSS CANADA. We have a pretty good start but as you can see from the list on the next page, Support Groups/Telephone Contact People are still needed in many of our Cities and Provinces.

   PLEASE SEND IN YOUR QUESTIONAIRE! Let us know what you would like to do and together we can make this a reality. This info is important for our database so if you have not returned it, PLEASE DO. If ‘NOT INTERESTED’, please indicate and your name will be removed from our mailing list.

   So much has happened this month. First of all I want to thank Tovi Nalder for getting us a lawyer—his name is Rodney Fong; Huckvale & Company.

   I have received the tapes from the U.S. TNA so anyone wanting to view them privately in their home may do so. We will also be showing them at our meetings.

   I have been very busy this past month and a half with all the questionnaires being returned. Patty has been a great help to me in doing typing & setting up the database, plus. All in all I do think that we have just about got it under control (I hope). I appreciate all the help that was offered to me from across our country however if you would have lived a little closer I would have taken you up on it.

   I received a very interesting phone call & email from “David Geall—Vital Link” <dgeall@vitalink-canada.com>. A copy of his email is located later in the newsletter for you to read. Mr. Geall is sending me a packet of information regarding VitaLink but I thought I would let you all know so that we may think about it. I would appreciate your comments and will address this further in the April newsletter.

   Until next month - Marion

 

 

 

 

 

LOT’S OF LAUGH’S

 

     A couple drove down a country road for several miles, not saying a word. An earlier discussion had led to an argument and neither of them wanted to concede on their position.

     As they passed a barnyard of mules, jack asses and pigs, the husband asked sarcastically, “Relatives of yours?”

     “Yep,” the wife replied, “in-laws.”

 

 

A bumper sticker seen on an Austin mini:

    The parts falling from this car are of the finest British workmanship.

 

 

A waiter brings the customer the steak he ordered with his thumb over the meat.

 “Are you crazy” yelled the customer, “with your hand on my steak”

 “What” answers the waiter, “You want it to fall on the floor again?”

 

 

 

 

 

 

 

TRIGMENIAL NEURALGIA ASSOCIATION OF CANADA

 

1514 Lakemount Blvd., Lethbridge, Alberta  T1K  3K4

 

 

 

LIST OF TNAC SUPPORT GROUP LEADERS:

 

Marion Guzik                     Lethbridge , AB           Phone:  403-327-7668

Clayton Thorpe                  Edmonton, AB             Phone:  780-467-2135

Barry Martin             Richmond, BC             Phone:  604-275-4799

Marion Hucul                     Winnipeg, MB              Phone:  204-697-9459

Pam Kabala                       Thunder Bay, ON                   Phone:  807-767-0022

Dana Lavrence                   Toronto, ON                Phone:  905-886-7563

Carol Horvat                      St. Catherines, ON       Phone:  905-687-8562

Robert Dunlop                   Ottawa, ON                 Phone:  613-235-3778

Leslie Ellis                         Trenton, ON                 Phone:  613-392-3893

Sy Moskowitz                    Montreal, Qebec          Phone:  514-934-0909

 

More to come…..

 

LIST OF TNAC TELEPHONE CONTACT PERSONS:

 

Gary Bauer                      Calgary, AB                    Phone:  403-720-6070

Don Brewer                     Lethbridge, AB               Phone:  403-381-8798

Arlayne Davies                Blackie, AB          Phone:  403-684-3550

Patty Moyer                     Lethbridge, AB              Phone:  403-345-6262

 

Raymond Trudeau            Abbottsford, BC           Phone:  604-852-8263

 

Gary Bannister                  Toronto, ON                 Phone:  416-203-3591

Carolina Crespi                 Toronto, ON                 Phone:  416-444-7600

Nora Kudrenecky               Kitchener, ON              Phone:  519-743-4579

Katharine McCran-Leach   Ottawa(Kanata)ON        Phone:  613-271-0780

Brenda Sharp                     St. Catherines, ON       Phone:  905-937-6178

 

June Angus                         Saskatoon, SK             Phone:  306-244-4867

Irene Klassen                    Regina, SK                  Phone 306-924-2457

 

More to come……

 

WELCOME TO THE TNAC EXPRESS!!!

Email from “David Geall—Vital Link” <dgeall@vitalink-canada.com>

 

“I first heard about the Trigeminal Neuralgia Association through one of your members here locally in the greater Toronto area. She contacted me in regards to a medical ID bracelet which is what my business does. She had a bad experience with a larger more common company and was looking for something else. We met shortly after and I explained how our service was VERY unique compared to what most people see a medical bracelet as doing & she instantly registered with our service. She has allowed us to share her name & number with you should you wish to contact her about her experience with our company. Her name is Heather Watson, (905) 451-3742—info@tudorhallframes.com.

   My background is that of a paramedic in the GTA for over 12 years. The mission behind our company is to help protect the community. We were hoping that you would be interested in promoting our service to your members. In return we have a means of becoming a fund raiser for your association at the same time. We have been involved with similar programs with the Heart & Stroke Foundation.

   What makes our service unique is that instead of having medical information engraved on a bracelet which limits the information that would fit; instead we put that information on a laminated wallet card. Instead, on the bracelet is information about our system. When someone registers with our system we are able to store as much as someone wishes to about their medical history, including actual medical documents. For your organization in particular also we can put in their file information about TN & the condition, etc. When a client of ours needs to go to an ER department the hospital can access the file through their fax machine. No matter where they may travel on vacation our service is available from anywhere in the world.

   I mentioned earlier in this email that through our program we have a means of generating funds for your cause. When someone registers with our service your organization would receive up to $15. To maintain their file, allow for unlimited updated & faxing around the world as well as replacing their wallet card at no cost, there is a $5.00 monthly fee. From that fee your organization would receive $1.00 per month every month.

   I truly feel that we have a win/win situation. Your members will have peace of mind knowing that should something happen that their medical file is available to them & at the same time we will be helping to raise funds for your cause.”

 

Sincerely,

David A. Geall,

Advanced Care Paramedic

President & Founder - VitaLink

 

Note from Marion:  I received another correspondence from Mr. Geall with a little more detailed information. He states that the registration fee is $40.00 which includes the cost of the jewelry, the laminated wallet card & the initial set up in the system. He also states, “Our clients have their medical records stored in a secure database. Other than an actual x-ray, we can store any other original document in our system including ECGs, living wills, etc. Also, should a patient have a unique or not well known condition, we can store information about that condition on their file, along with their other documents. An emergency department can then access those documents & a copy of the records on our file are faxed immediately to the hospital, anywhere in the world. Our clients still wear a bracelet or a necklace but as an identifier of being a member of our service. These bracelets contain our company name, our toll free number, & the client’s unique ID number. This bracelet never becomes out of date. Our clients also receive a laminated wallet card with the same information on the front & instructions on how to access the system on the back. Also, on the back we list pertinent medical history, similar to what a traditional bracelet would have, as well as drug allergies. Should this card require updating, it is done so at no charge.”

 

 

RECIPES ...............


MEAT BALL GOULASH WITH SPAGHETTI (serves 6)

          Submitted by: Mona Wells

1 lb. Ground lean beef (hamburger)

1/2 cup chopped onion

1/2 cup coarse bread crumbs or cubes

1 egg unbeaten

1 tsp. Salt

Dash thyme

1/4 tsp. Pepper

2 tblsp. Crisco

3 cups water

Sauce:

1 can Cream of Mushroom Soup

1—8 oz. Can tomato sauce

1 1/2 tsp. Salt

1/2 Bay Leaf

1 pkg. Thin spaghetti, broken into 2” lengths

       In medium size bowl, combine beef, 1/4 cup onion, bread crumbs, egg, salt, thyme & pepper. Mix lightly with fork, do not over mix.  Shape into 30 small balls. Brown meat balls over med. heat in Crisco in large heavy fry pan with tight fitting lid. Stir in water, soup, tomato sauce, remaining onion, salt (for sauce) & bay leaf. Bring mixture to boil & add spaghetti. Cover tightly. Simmer 25-30 min. till spaghetti is tender, stir occasionally to keep spaghetti from sticking.

       Mona says she puts in a little oil into the mixture to keep it from sticking.

 

 

 

 

 

 

CHEESE GARLIC BISCUITS (like Red Lobster Restaurant ones!)

 

Preheat oven to 450 degrees.

 

2 cups Bisquick baking mix

2/3 cup milk

1/2 cup shredded Cheddar cheese

1/4 cup margarine or butter, melted

1/4 teaspoon Garlic powder

 

Mix Bisquick, milk and cheese to make a soft dough. Beat vigorously for 30 seconds with a wooden spoon. Drop dough by tablespoonfuls onto an un-greased sheet and bake 8-10 minutes until golden brown.

 

Mix margarine and garlic and brush over the warm biscuits before removing from the sheet. Serve warm. Serves 10-12

 

Taken from Bob Allison’s Ask Your Neighbor

www.askyourneighbor.com/recipes/029.htm

 

 

 

 

 

Janet McCluskey, Hamilton, Ontario - TN Story

 

     I was diagnosed with TN last May, 2002. I started out by going to my dentist thinking I had a toothache. I felt bad that I couldn’t tell him which tooth was giving me the problem. Couldn’t even tell him if the offending tooth was upper or lower as my whole jaw was throbbing. My teeth were checked thoroughly, and found to be sound and healthy. I was prescribed antibiotics for an infection that didn’t exist. Within a week after that I decided maybe it was a sinus infection since the pain was now radiating from my lower jaw almost up to my eye. Suddenly it dawned on me as I lay writhing in pain on Friday after work that it might be Tic Douloureux. You see, my father had been diagnosed with it about 15 years ago and I was familiar with the symptoms. I just hadn’t yet associated his problem with what I was experiencing.

     I called the doctor that night (of course my doctor was off so I got the doctor on call) and made an appointment to see him the first thing on Saturday. He asked all sorts of questions, and fortunately, being familiar with the symptoms of TN agreed with my diagnosis and immediately prescribed Carbamazepine. I insisted on starting out at a very low dosage because I remembered the dizziness and grogginess that my father experienced when he was first put on it. We had just purchased a house and were moving in two weeks not to mention I have a job to do and couldn’t cope with major side effects. I was fortunate that at first a does of half of a 200 mg tablet twice a day did the trick. I did eventually increase the dosage to one 200 mg tablet twice a day and the side effects were bearable and the pain seemed to be handled.

     After a little over three months, I weaned off the drug and appeared to be in remission. This would have been in around late August, early September. I was fine for several months but another episode/flare-up started just before Christmas. This one started out gradually but now seems worse than the last. I have had to increase my dosage of Carbamazepine from 200 mg to 500 mg and I’m still not quite pain free. What I have now is constant “pins and needles” and occasional stabs of pain beginning in the back of my lower jaw. I feel I can live with my current symptoms and I hesitate to increase the dosage any more as I am already experiencing the dizziness, the groggy “zombie” feeling and constant sleepiness.

     I am finding it more and more difficult to do my job. I can only do one thing at a time and have to double check my work frequently. I also find myself forgetting things that I did a month ago. I find it difficult at times, in conversation, to think of words that have long been part of my vocabulary.

     My episodes/flare-ups seem to be brought on by stress. And of course, each episode brings about plenty of stress of its own. Also, I live in a climate where we have hot humid days in the summer and cold, blustery days in the winter. I’m having a hard time being outside right now due to the cold breezes. In the summer, during my last episode, the heat and humidity was oppressive and painful on my face.

     I recently discovered the University of Manitoba website and have seen Dr. Kaufmann’s name associated with that. I’m very impressed with his work and I’m happy to see he will be associated with the TNA of Canada…..

     Janet goes on to say that “her father who is 75 and takes 200 mg of tegretol per day, every day, and it seems to keep the pain at bay.” Her youngest daughter, who “has the same rare blood type as my father and I, is worried that she will get TN too. We are all type O Negative.”

 

Janet can be reached at:  janet_mc_c@hotmail.com

 

 

 

 

 

 

 

 

 

Very Interesting…………

 

Marion received the following email & thought it was quite fascinating. At no point do they mention TN but it certainly brings it to mind. Could this be another option for TN sufferer’s? Maybe Dr. Kaufmann could comment on this interesting item.

 

INDEX: Health

Experimental implant under the scalp zaps away crippling headaches.

By: Lauran Neerguard.

 

WASHINGTON (AP) - Teresa Lamesch endured a constant, incapacitating headache for almost two years. The slight touch of wind blowing against her forehead caused shocking jolts of pain. Bright sunlight or loud noises could make her retch.

   Heavy-duty narcotics & every other treatment failed to help. Then Dr. Sandeep Amin tried a last-ditch experiment. He hooked a tiny electrode to a needle & tunneled it under the skin by Lamesch’s left eye, stopping atop the nerve responsible for her pain. Powered by a battery implanted near her collarbone, the device continually zaps that nerve with electric pulses - blocking the Illinois woman’s pain. “The minute he put it in, the pain was gone,” says a grateful Lamesch. An estimated 20 million Americans suffer severe headaches and as many as 10 percent of them have intractable head or facial pain. Treatment after treatment fails. Some are true migraines which stem from inside the brain but others-mistakenly called migraines-result from damaged nerves along the face or scalp. Now, a few doctors are exploring how well nerve stimulators implanted in different spots along the head could rid some of that crippling nerve-caused pain.   People feel pain when nerve cells pass signals from one to another until the “I’m hurting” message reaches the brain.

   Doctors have long implanted electrodes along the spinal cord to block certain kinds of pain from the neck down by interrupting those signals. But the stimulator had to be placed above the pain site - so blocking the pain in the back, legs or arms was doable but not in the head. Then came the discovery that stimulating head & facial nerves at skin-deep levels, not just directly against the spinal cord could work. First doctors targeted the occipital nerve to alleviate whiplash-like pain or back-of-the-head headaches. Now they’re starting to target frontal headaches & facial pain at the supraorbital nerve just above the eye. It sounds logical but “it really was surprising” to headache specialists that this new use of the implants seems to work well, said Dr. Robert Levy, a neurosurgeon at Northwestern Memorial Hospital who has implanted stimulators in the foreheads of four people so far. The first two he treated have reached the two-year mark pain free.

   Nerve stimulation “has done wonders for this kind of a headache,” agrees Amin, an anesthesiologist & pain specialist at Chicago’s Rush-Presbyterian-St. Luke’s Medical Center, who implanted Lamesch & another patient who suffered unrelieved headaches after brain surgery. It’s simple to implant. A battery lies under the skin by the collarbone & a small wire runs up the neck & into the scalp. Two implants are needed if pain is on both sides of the head. A magnet turns the electric current on or off. Turned off, pain resumes - but the implant is vulnerable to security devices like those in airports & must be switched off until patients pass by.

   Nerve stimulation for headaches is still highly experimental. But a handful of doctors have asked stimulator maker Medtronic Inc. to fund studies to prove how well it works for different kinds of head pain. Medtronic is considering a study first of occipital nerve pain.

   A $5,000-10,000 implant sounds extreme for headaches. But these are extreme cases. “I see patients who are significantly debilitated, on dozens of medications with overwhelming medical bills,” Levy says. Levy & Amin doubt nerve stimulation would help true migraines. Instead, they hope to help people with the nerve-cause head or facial pain, whose options now range from narcotic painkillers - including implanted morphine pumps - to nerve-blocking injections into the spinal cord. Some even undergo attempts to surgically destroy the affected nerve. Some, like Lamesch, fail all those options. “I had stopped living,” says the Wheaton, Ill., woman, who suffered pain in her legs and head after a tricky knee operation. A spinal cord stimulator stopped the leg pain so Amin finally adapted another one for her forehead. Now, she says, “I am bionic….I’m getting back on track.”

 

 

 

 

 

Patty’s Ponderings and Miscellaneous Ramblings:

  

       I have been so busy working on the database & other miscellaneous goodies for the organization, that I haven’t had time to enjoy being sick & off of work! I’ll be off work until the end of March from what I’m told, so I guess that means that Marion can still utilize my dubious skills!!

      I don’t really have a lot to talk about this time except for the fact that I’m working real hard on setting up the Canada wide Membership Database. It’s very important for all of you who haven’t returned the questionnaire's to Marion to do so as soon as possible so that the database can be finished. Now that we have our Charitable Org. number, I’ll start working on setting up our web site & compiling some ideas for fund-raising events along with whatever else Marion dreams up for me to do! Good thing I have all this “spare-time” at the moment, isn’t it, Marion? I must admit, there haven’t been too many dull moments lately.

     That’s about all I have to talk about this time. I’ll close my ramblings with a few of my “Zen” thoughts for you to  ponder. Have a great month.

          Patty

 

 

 

 

Patty’s “Zen” thoughts:

 

A day without sunshine is like, night.

On the other hand, you have different fingers.

42.7 percent of all statistics are made up on the spot.

99 percent of lawyers give the rest a bad name.

I feel like I'm diagonally parked in a parallel universe.

Remember, half the people you know are below average.

He who laughs last thinks slowest.

Depression is merely anger without enthusiasm.

Monday is an awful way to spend 1/7 of your week.

A clear conscience is usually the sign of a bad memory.

Get a new car for your spouse. It'll be a great trade!

Plan to be spontaneous tomorrow.

Always try to be modest, and be proud of it!

If you think nobody cares, try missing a few payments.

OK, so what's the speed of dark?

How do you tell when you're out of invisible ink?

If things are coming your way, you're in the wrong lane.

Hard work pays off in the future. Laziness pays off now.

What happens if you get scared half to death twice?

I used to have an open mind but my brains kept falling out.

Why do psychics have to ask you for your name?

 

And three of my favorites:

    The early bird may get the worm, but the second mouse gets the cheese.

     If everything seems to be going well, you have obviously overlooked something.

     Inside every older person is a younger person wondering what the heck happened

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

TNAC (Trigeminal Neuralgia Assoc. of Canada)

BOARD OF DIRECTORS

 

EXECUTIVE DIRECTORS                           DIRECTORS:

Marion Guzik; President                                    Mona Leslie

Don Brewer; Secretary/Treasurer                     Patricia Moyer             

                                                                             John Edwards

 

 


Trigeminal Neuralgia Association of Canada

CONTACT INFORMATION:

 

Head Office and Lethbridge Support Group                                    Calgary Contact Info:

Marion Guzik                                                                                       Marilyn Najm

TNAC President                                                                                  P.O. Box 2376

1514 Lakemount Blvd. South                                                               Banff, AB   T0L 0C0

Lethbridge, AB  T1K 3K4                                                                   Phone: 403-762-3650

Phone: 403-327-7668                                                                          Email: najmmar@telusplanet.net

email: mguzik@telus.net

 

TNAC Newsletter:

Patty Moyer

TNAC Editor

P.O. Box 973

Coaldale, AB T1M 1M8

Phone: 403-345-6262

Email: pgmoyer@telusplanet.net